1. Group aids parents with children in medical crisis
Founders: Melissa and Austin Moore, in memory of their son Greyson.
Address: P.O. Box 1561, Stillwater, OK 74076-1561
Hello! I am reaching out to everyone I can to let them know there is an international nonprofit for arterial tortuosity syndrome. It is a very rare genetic connective tissue disorder and effects mostly children. If you see this in any of your patients or colleagues have seen anyone, please share our web address: www.atwistoffate-ats.com
I am the president and founder of the nonprofit/patient group and my email is firstname.lastname@example.org Thank You! Andrea Taylor